CleftPALS Qld Inc is a voluntary group comprising parents, professionals and other individuals interested in the welfare of individuals born with a cleft lip and/or palate and their families.

The Federal Government’s National Privacy Principles which are set out in the Commonwealth Privacy Act 1988, represent a legal obligation which we are required to fulfil.

We are committed to the protection of your privacy by acting in accordance with the requirements of the Privacy Act and the national Privacy Principles.  A copy of the National Privacy Principles may be obtained from the Office of the Federal Privacy Commissioner or the Commissioner’s website at www.privacy.gov.au

We treat all information with care to ensure confidentiality is maintained at all times, is accurate and protected from misuse.   Please read this policy carefully and if you have any questions, please contact us.

What information do we collect and what is it used for

The amount and type of information we hold about you depends on the nature of your relationship with us and the extent of service you require.

To enable us to provide a high level of service to you, we ask that you provide certain information to us including your name, address and contact details including telephone and fax numbers and email addresses, personal and medical details of the cleft affected person, their medical history and details of any ongoing treatment.

We will only collect your personal information where it is necessary for one or more of the functions or activities we perform when providing a service to you.

Examples of these services include membership, providing newsletters (including a welcome to new babies) and other documentation, specialist feeding equipment, assistance with pre-natal and pre-op and post-op feeding and care, preparation for surgery, matching with appropriate Contact Parent and families where required, and programs we run such as Birthday Club.  Information on the cleft condition is also collected for statistical purposes and while this information is made public, it is done so in a non-identifying manner.

All the information we collect assists us to respond to the needs of the cleft community including planning and improving existing services and also in developing and identifying other products or services that may benefit or interest you.

Other ways we may use your information include assisting individuals or institutions such as hospitals and universities who are conducting research, trials or surveys relating to clefts.  However, consent will always be sought from you prior to disclosing any personal details for this purpose.